Caregiver Burden with Mesothelioma: Social Support and Family Resilience
A new study found that older or spousal caregivers of patients with lung cancer are more likely to suffer from caregiver burden. This discovery was made by researchers in China. Their goal was to find factors related to caregiver burden in lung cancer families. They also wanted to find out if family resilience can improve caregiver burden. Taking Care of a Loved One Malignant mesothelioma is a highly lethal type of membrane cancer. Most mesothelioma patients lived or worked around asbestos. When mesothelioma occurs in the lungs, it is called malignant pleural mesothelioma. There are approximately 2,000 cases of mesothelioma in the United States every year. People with mesothelioma might start to feel shortness of breath, chest pain, and weight … Continue reading Caregiver Burden with Mesothelioma: Social Support and Family Resilience
Experience of Hope in Mesothelioma Patients and Caregivers
A new review in JBI Manual for Evidence Synthesis evaluated the experience of hope in adult patients with advanced disease. Finding hope and positivity were helpful strategies for patient and caregiver emotional well-being. The experience of mesothelioma is characterized by uncertainty and worry for some patients. But the same patients say they are also optimistic and hopeful. This study did not focus on the lived experience of mesothelioma. But American mesothelioma patients are underrepresented in the medical literature. The US has a higher number of mesothelioma deaths each year than any other country. The new study shows the experience of these patients is much like that of mesothelioma patients elsewhere in the world. Focused on Improving Quality of Life Mesothelioma … Continue reading Experience of Hope in Mesothelioma Patients and Caregivers
Humor Helps Stressed Veteran Mesothelioma Caregivers
Mesothelioma, the asbestos-caused cancer, has a high symptom burden in British military veterans. There is little research on what it is like to live with mesothelioma as a veteran. Or what it is like for veteran mesothelioma caregivers. New research has been published in the journal of Illness, Crisis & Loss on this topic. The article highlights how veterans and their families cope with the stress of the disease. Asbestos Exposure in the British Military Malignant mesothelioma is a disease linked to asbestos exposure. Asbestos exposure in the British Armed Forces has been documented. Many were exposed in damaged buildings during conflict and aid delivery. Mesothelioma is often diagnosed in older people, and survival rates are poor. Symptoms first appear … Continue reading Humor Helps Stressed Veteran Mesothelioma Caregivers
Stories from Wives and Caregivers of People with Mesothelioma
A new Australian study looked at people who took care of mesothelioma patients. The study found that caretakers needed different types of support. Mesothelioma is a cancer caused by exposure to asbestos. Patients with mesothelioma, and their caregivers, are known to have some of the highest unmet needs of all cancer populations. Researchers talked to fourteen caregivers recruited from the Asbestos Diseases Foundation of Australia (ADFA). Of those interviewed, 13 were wives, and one was a daughter. Seven were retired at the time of the patients’ mesothelioma diagnosis, and 4 stopped work to provide care. Researchers used the feedback to assess best practices for follow-up care for mesothelioma. They now plan to share these best practices with clinicians across the … Continue reading Stories from Wives and Caregivers of People with Mesothelioma
Clinical Trial Participation: Perspectives from Mesothelioma Patients and Caregivers
Clinical trial participation is a common topic for mesothelioma patients and their caregivers. Treatment options for mesothelioma are increasing. This is a direct result of the number of clinical trials available to patients. Yet, little is known about patients’ and relatives’ feelings about trial participation. A new study provides insight into people’s experiences of clinical trial participation. They also report what factors influence decision-making. Scientists interviewed twelve people, comprising five mesothelioma patients and seven relatives. They identified four themes related to the experience of mesothelioma. First, is the physicality of the disease. Second, the patient’s quality of life. Third, uncertainty and risk are associated with mesothelioma. And fourth, planning for an unpredictable future. A further theme included attitudes on clinical … Continue reading Clinical Trial Participation: Perspectives from Mesothelioma Patients and Caregivers
“My Name is Paul Kraus and I Have Survived Mesothelioma for Over 20 Years.”
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