Tag Archives: caregiver

Humor Helps Stressed Veteran Mesothelioma Caregivers

Humor Helps Stressed Veteran Mesothelioma Caregivers

Mesothelioma, the asbestos-caused cancer, has a high symptom burden in British military veterans. There is little research on what it is like to live with mesothelioma as a veteran. Or what it is like for veteran mesothelioma caregivers. New research has been published in the journal of Illness, Crisis & Loss on this topic. The article highlights how veterans and their families cope with the stress of the disease. Asbestos Exposure in the British Military Malignant mesothelioma is a disease linked to asbestos exposure. Asbestos exposure in the British Armed Forces has been documented. Many were exposed in damaged buildings during conflict and aid delivery. Mesothelioma is often diagnosed in older people, and survival rates are poor. Symptoms first appear … Continue reading Humor Helps Stressed Veteran Mesothelioma Caregivers »

Stories from Wives and Caregivers of People with Mesothelioma

Stories from Wives and Caregivers of People with Mesothelioma

A new Australian study looked at people who took care of mesothelioma patients.  The study found that caretakers needed different types of support. Mesothelioma is a cancer caused by exposure to asbestos. Patients with mesothelioma, and their caregivers, are known to have some of the highest unmet needs of all cancer populations. Researchers talked to fourteen caregivers recruited from the Asbestos Diseases Foundation of Australia (ADFA). Of those interviewed, 13 were wives, and one was a daughter. Seven were retired at the time of the patients’ mesothelioma diagnosis, and 4 stopped work to provide care. Researchers used the feedback to assess best practices for follow-up care for mesothelioma. They now plan to share these best practices with clinicians across the … Continue reading Stories from Wives and Caregivers of People with Mesothelioma »

Clinical Trial Participation: Perspectives from Mesothelioma Patients and Caregivers

Perspectives of Clinical Trial Participation from Mesothelioma Patients and Caregivers

Clinical trial participation is a common topic for mesothelioma patients and their caregivers. Treatment options for mesothelioma are increasing. This is a direct result of the number of clinical trials available to patients. Yet, little is known about patients’ and relatives’ feelings about trial participation. A new study provides insight into people’s experiences of clinical trial participation. They also report what factors influence decision-making. Scientists interviewed twelve people, comprising five mesothelioma patients and seven relatives. They identified four themes related to the experience of mesothelioma. First, is the physicality of the disease. Second, the patient’s quality of life. Third, uncertainty and risk are associated with mesothelioma. And fourth, planning for an unpredictable future. A further theme included attitudes on clinical … Continue reading Clinical Trial Participation: Perspectives from Mesothelioma Patients and Caregivers »