The RARECARE Project: An International Network Includes Mesothelioma
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The RARECARE Project: An International Network Includes Mesothelioma

ByHolly Zink

The RARECARE Project is a network of international clinicians who support rare tumor patients. This includes malignant mesothelioma, the asbestos-caused cancer. RARECARE wants to ensure access to clinical trials. And to the second opinion of cancer specialists. They are working towards guaranteeing equal health care access and better care management. Humble Beginnings In 2008, the European Commission started the RARECARE project. It is a cancer registry with patient data. They are trying to define the incidence, prevalence, and outcome of rare cancers. Soon, the RARECARE registry led to a second project, RARECAREnet. This updated and enlarged the available information on rare cancers in Europe. Mesothelioma remains one of the rarest of rare cancers. It is more common in the UK…

Clinical Trial Participation: Perspectives from Mesothelioma Patients and Caregivers
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Clinical Trial Participation: Perspectives from Mesothelioma Patients and Caregivers

ByHolly Zink

Clinical trial participation is a common topic for mesothelioma patients and their caregivers. Treatment options for mesothelioma are increasing. This is a direct result of the number of clinical trials available to patients. Yet, little is known about patients’ and relatives’ feelings about trial participation. A new study provides insight into people’s experiences of clinical trial participation. They also report what factors influence decision-making. Scientists interviewed twelve people, comprising five mesothelioma patients and seven relatives. They identified four themes related to the experience of mesothelioma. First, is the physicality of the disease. Second, the patient’s quality of life. Third, uncertainty and risk are associated with mesothelioma. And fourth, planning for an unpredictable future. A further theme included attitudes on clinical…